Thursday, December 17, 2009

The Man Hit By Lightning 7x and Survived

Roy Cleveland Sullivan (Feb.7, 1912 – Sept. 28, 1983) was a U.S. park ranger in Shenandoah National Park in Virginia. Between 1942 and 1977, Sullivan was hit by lightning on seven different occasions and survived all of them. For this reason, he gained a nickname "Human Lightning Conductor" or "Human Lightning Rod". Sullivan is recognized by Guinness World Records as the person being struck by lightning more recorded times than any other human being. He died from a self-inflicted gunshot wound at the age of 71.

Sullivan was described as a brawny man with a broad, rugged face, who resembled the actor Gene Hackman. He was avoided by people later in life because of their fear of being hit by lightning, and this saddened him. He once recalled "For instance, I was walking with the chief ranger one day when lightning struck way off. The chief said, 'I'll see you later.'" On September 28, 1983, Sullivan died at the age of 71 from self-inflicted gunshot wound in the stomach. It is believed that rejected love by a woman was a cause of his suicide.

The chances of being struck by lightning are very slim; the chances of being struck by lightning twice (on different days) is seemingly impossible; so what are the odds of being struck by lightning seven times? With our world record holder, Roy Sullivan, the events happened as follows:

1942 – Sullivan was hit for the first time when he was in a lookout tower. The lightning bolt struck him in a leg and he lost a nail on his big toe.

1969 – The second bolt hit him in his truck when he was driving on a mountain road. It knocked him unconscious and burned his eyebrows.

1970
– The third strike burned his left shoulder while in his front yard.

1972
– The next hit happened in a ranger station. The strike set his hair on fire. After that, he began to carry a pitcher of water with him.

1973
– A lightning bolt hit Sullivan on the head, blasted him out of his car, and again set his hair on fire.

1974
– Sullivan was struck by the sixth bolt in a campground, injuring his ankle.

1977
– The seventh and final lightning bolt hit him when he was fishing. Sullivan was hospitalized for burns in his chest and stomach.

His “lightning hats” are on display in New York’s and South Carolina’ s Guinness World Exhibit Hall.

All the seven strikes were documented by the superintendent of Shenandoah National Park, R. Taylor Hoskins, and were verified by doctors. Sullivan himself recalled that the first time he was struck by lightning was not in 1942 but much earlier. When he was a child, he was helping his father to cut wheat in a field, when a thunderbolt struck the blade of his scythe without injuring himself. Because he could not prove the fact later, he never claimed it.

Sullivan's wife was also struck once, when a storm suddenly arrived as she was out hanging clothes in their back yard. Her husband was helping her at the time, but escaped unharmed.

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Sunday, December 6, 2009

Jonathon Schacher - Pit Bull Biter in Saskatchewan, Canada

“When a dog bites a man, that is not news, because it happens so often. But if a man bites a dog, that is news.”
– John B. Bogart, New York Sun editor of long, long ago
* * * * *

September 2009. It's a true-to-life case of man bites dog.

A Saskatoon man says he unleashed his inner canine in order to stop a wandering pit bull terrier from attacking his neighbour's dog about two weeks ago.

In a Sept. 24 interview, Jonathon Schacher said he heard a scream outside his home and looked outside to see the pit bull and the other dog entangled.

He said he ran outside and tried to pull the aggressive dog off the other, but the pit bull had its jaw locked around his neighbour dog's muzzle.

He tried yanking the pit bull off, but Schacher said that didn't work.
Trying to pry its jaw open didn't work either.
"I could just feel I needed to do something, and so I bit the dog right on the nose," he said.

He said the pit bull yelped in pain and he was able to pull on its jowls to give up his attack on the other animal.

Amazingly, the pit bull turned meek, Schacher said.
"He just sat down and his tail started wagging, and then I let go of him." But that's not all. Schacher said the dog licked him on the face, seemingly in supplication.

Schacher's neighbour told CBC News the pit bull left the neighbourhood following the incident.

Believe it Or Not?

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Fu Bingli - Strongest Index Finger

Fu Bingli, a kung fu master from China, has proved he has the strongest fingers in the world.

Bingli – who has been studying martial arts for 32 years since the age of just seven – can stand upside down supporting himself on just one index finger.

On Monday he scooped the Guinness world record for completing 12 press ups on just one finger of his right hand.

"I've been training since I was seven years old and my index finger has as much strength in it as most people's entire body," said Fu of Lianyungang, eastern China.

Last week the world's smallest man, Khagendra Thapa Magar, revealed his wish for his 18th birthday to be officially recognised by the Guinness World Records and to find a wife.

The 2ft tall teenager is a full head and shoulders shorter than He Pingping of China, who at 2ft 5in is the current holder of the world's smallest man title. He is now waiting for official recognition from Guinness World Records.

"Now I have turned 18 I want two things: to be recognised by Guinness and to find a wife who is small like me," said Khagendra.

The tiny teen, who weighs just 10lbs, first contacted the Guinness Book of World Records three years ago, hoping to be recognised as the world's smallest boy.

Khagendra has become something of a celebrity in his native Nepal, where politicians have backed his Guinness campaign.

Born weighing only 1lb 5oz in the remote Baglung District, 125 miles from the capital Kathmandu, Khagendra's family members believe he was destined for greatness.

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Being Different - Human Oddities (1981-Full Movie)

A tribute to the spirit and humanity of people who are physically different from the average: very tall and very large men and women, a bearded woman and her long-time husband, Siamese twins joined at the midsection, and several little people including actor Billy Barty. We meet some at Gibsonton, Florida, where carnival folk winter. They talk about their lives and accomplishments. The camera also goes on the road to visit a grandfather with a distinctive face, a legless mechanic from Kentucky on a second honeymoon in LA, a marathon runner and motivational speaker who has no feet, a karate student with partial limbs, and an armless, down-to-earth mom in Texas.

* Written & Directed by Harry Rasky
* Narrated by Christopher Plummer

Being Different is an overview of several “human oddities” — people who would, in an earlier, crueler era, have been called “freaks.” (Even the term “human oddities” seems a bit insensitive, but so far I don’t think anyone’s come up with a good term which fulfills the unstated PC mandate of “distinction without qualitative judgement.”) Our narrator, Christopher Plummer, makes allusions to both Alice in Wonderland and Gulliver’s Travels while gazing thoughtfully into a funhouse mirror. What would it be like, he muses, if we stayed that way?

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The most famous of the people here are Emmett and Percilla Rejano, who are respectively the Alligator Man and the Monkey Girl; together, they’re billed as the world’s strangest married couple, and they seem very happy together. But Percilla’s hairy face demonstrates that, even in Gibsonton, there are limits to the extremes that the “normal” locals can accept easily; Percilla habitually wears a concealing wrap when out in public.

Louise Capps was born in the small town of Gunbarrel City, Texas, in 1952. She was abandoned at birth by her mother, an American Indian, who was an alcoholic. Louise became a ward of the state, but was soon adopted by Eugene Capps and his wife. Mrs. Capps was a schoolteacher and encouraged Louise to use her feet, teaching her that she could do anything that anyone with arms can do.

Louise married twice and was single again when the film crew for Being Different interviewed her in 1979. One of her husbands, Bruce Hill, was a human blockhead she met in the sideshow at the Texas State Fair. She claims she married so that she could have children, and had always wanted a son with dark hair and eyes like hers, and a blonde, blue-eyed daughter. Both of her children are featured in the documentary. Ward Hall says that blonde, blue-eyed Nola would go on to be a showgirl with the sideshow. Louise enjoys swimming, playing guitar, embroidery, rollerskating and horseback riding, and has a license to drive either a car or a truck. The documentary Being Different (1980) features her prominently, and she is shown painting pottery, typing on a typewriter, cutting her son's hair, roller skating, driving her car, riding a horse and country-western dancing.

Robert Owen 'Bob' Melvin, the Man with Two Faces, was born in Lancaster, Missouri in 1920 and died in 1995. He was also called 'The Modern-Day Elephant Man'. He appeared in several movies, including the documentary Being Different in 1980 and the schlock horror The Sentinel in 1977. Doctors examined Bob but were unable to find a diagnosis for his deformity; Bob said it was simply "god's sense of humor". Towards the end of his life, he was found to have neurofibromatosis, a disorder that causes the spontaneous growth of fibrous tumors. Manifestations of NF differ greatly from patient to patient; some simply have hyper-pigmented or "cafe au lait" spots, while others, such as Grace McDaniels, are greatly deformed. Bob Melvin was a friendly, church-going man, beloved by all who knew him in his hometown of Lancaster. He was married and had a daughter and a granddaughter. Bob passed away in his hometown of Lancaster, Missouri, on November 19, 1995.

NOTE:
It is written in the Holy Scriptures: Romans 9:20-21 - "Nay but, O man, who art thou that repliest against God? Shall the thing formed say to him that formed it, Why hast thou made me thus? Hath not the potter power over the clay, of the same lump to make one vessel unto honour, and another unto dishonour? "

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BodyShock - The Girl With 8 Limbs

BodyShock - The Girl With 8 Limbs

This Documentary tells the story of Lakshmi Tatma, the girl with eight limbs. Two-year-old Lakshmi was born with one of the world's rarest physical abnormalities. Joined at the pelvis to her half-formed conjoined twin.

Lakshmi Tatama is an Indian girl born in 2005 in a village in Araria district, Bihar, having "4 arms and 4 legs." She was actually a pair of ischiopagus conjoined twins where one twin was headless due to its head atrophying and chest underdeveloping in the womb. The result looked like one child with four arms and four legs.

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In her remote Indian village she is revered as a living god. With exclusive access, this film follows Lakshmi's family on an epic emotional journey from their rural home to a hospital in Bangalore where her parents must decide whether to proceed with potentially life-threatening surgery to remove her extra limbs.
* * * * * * * * * *
BANGALORE: Doctors at a superspeciality hospital here, who have commenced a complicated surgery on two year-old Lakshmi, a conjoined twin, on Tuesday successfully separated the spines. "The condition of the child is stable," doctors said.

A team of neurosurgeons have completed their part of the surgery, separated the spines, which the doctors described as "most critical" part of the 40-hour operation that began at 7 am (IST) on Tuesday.
Dr Sharan Patil, the orthopaedic surgeon who heads the five-member core team performing the operation at Sparsh Hospital, said the separation of spines has been smooth without any complications.

"Paediatric surgeons are now operating and trying to separate the organs and then orthopaedic surgeons will try to reconstruct the pelvic ring," he said. "With the reconstruction of the pelvic ring, the first stage of the surgery will be completed," Patil said. He expressed hope that the team will be able to complete the first stage of the operation on Tuesday night.

* * * * * * * * * *

NOV 7. 2007
It took more than 30 surgeons 27 hours to not only remove two of Lakshmi's arms and two of her legs but also to rebuild much of her body and save her organs. They say the chances of death were as high as 25 percent.

The cost of such a complex procedure would have been $625,000, far too great for the Lakshmi's family to afford. The hospital's foundation paid. "We are very grateful to all the doctors for seeing our plight and deciding to help us," Tatma's father, Shambhu, told The Associated Press. Dr Sharan Patil (photo on the right) - ->

NOTE:
Conjoined twins occur in about one in every 200,000 births, and their survival rate can be as low as 5 percent. Historical records over the past 500 years detail about 600 surviving sets of conjoined twins - more than 70% of which have been female twins.

Wednesday, November 25, 2009

BodyShock - The Boy With a New Head

BodyShock - The Boy With a New Head
Petero Byakatonda lives in a remote village in Uganda. Born with an extremely rare disorder, his skull is being forced into a cone shape, squashing his brain and destroying his eye-sight. He has been flown to Dallas, Texas for life-saving surgery from a leading US surgeon.

Petero suffers from a rare genetic disorder known as Crouzon's Syndrome or Crouzon's Disease. It affects just one in ten thousand new-borns and needs to be corrected within a few months of birth. Because Petero's village is so isolated he was left untreated. It's extraordinary that he is still alive.

In Crouzon's Disease the bones of the skull fuse together prematurely, so the skull can't expand as the brain grows. The brain is forced to grow in the direction of least resistance.


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Dr Kenneth Salyer the leading craniofacial surgeon who will treat Petero explains "Petero has ended up with a steeple-shaped skull because this was the weakest area of the skull. So the brain grew up instead of forward. This can result in constriction of the brain to the point where there may be herniation at the base of the brain and death".

Petero's trip to Dallas and his subsequent treatment was made possible by a charity headed by Dr Salyer called The World Craniofacial Foundation. Founded over 17 years ago, the charity helps over 75 children a year, from all over the world, suffering from severe skull deformities.








Monday, November 16, 2009

ExtraOrdinary people - The man with no Past

ExtraOrdinary people - The man with no Past
Before the 4th of December 2005, David was a normal 25-year-old with family, friends and memories. That afternoon, he suffered one of the rarest forms of memory loss ever recorded. The condition, known as a psychogenic fugue, wiped his entire memory clean, leaving him with no identity. This film follows David as he tries to recover the life he had before and attempts to start all over again.

When David Fitzpatrick found himself standing in front of Kings College Hospital, London, he had no idea how he had got there – or who he was. The confused young man was admitted to the hospital as an ‘unknown male’ and his case was referred to the local Missing Persons Unit. Four days later, maps brought in by the police provided a breakthrough when David recognised the Justify Fulladdress of his old football coach, Mike Rook.

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Worried family and friends flocked to David’s hospital room, hoping to find out what had happened. The experience was overwhelming for David and traumatic for his family, who were devastated when he failed to recognise them. His mother Jeanette recalls that her son displayed “no reaction whatsoever” when she embraced him – a gesture which David remembers as “like a stranger holding me”.

With doctors uncertain of how long it will take for his memory to return, David is embarking on a journey of discovery in the hope of filling in the blanks. While hopeful at the prospect of retrieving his memory, he is also apprehensive at the thought of uncovering what made him go into his fugue in the first place. What was it that prompted his brain to go into shutdown and wipe all his memories of family, experiences and even world events?

David begins his quest by revisiting his childhood home, but is disheartened that the trip fails to trigger any memories of his early years. And when a visit to his old football club sees David awarded the Manager’s Player award for his achievements in the previous year, he cannot remember the matches that showed off his skills.

Without his own memories, David is forced to rely on the recollections of others. “I have to accept what they say,” he explains. “There’s no proof apart from what they are telling me.” He says that he found it difficult to trust people at first, and discovered that his family and friends had conflicting recollections of who he was. In an effort to learn more about his true self,David goes to his old school to hear about what he was like as a boy. He meets up with his old form teacher, who recalls the young David as a ‘scallywag’ and ‘likeable rogue’. After hearing stories about his schoolday antics, reading his old reports and examining photographs, David begins to feel more confident that his memories may be unlocked: this trip has emphasised to him that he existed in the past, even though he cannot remember it. “It’s given me optimism that things will come back quite quickly,” he says. “I didn’t think that before.”

However, David soon realises that the quest to uncover his past will not be straightforward. Not only does he have a six-year-old daughter he must get to know again, but he finds out that a break-up with the woman he saw as the love of his life had sent him into a spiral of self-destructive behaviour. At the time, he hit the drink hard and was even banished from friends’ houses. Was it this chaotic turn of events that pushed him into his fugue? Now that David’s friends and acquaintances have provided him with an insight into the man he was before the fugue, he has a unique opportunity to start again. Painful though the experience has been, he has confronted his past. “I’m back at zero,” he says. “This is where my life starts.”

ExtraOrdinary People - Identical Quads

ExtraOrdinary People - Identical Quads
Aphex Twin fans across the nation will run for the hills when then see this episode of Extraordinary People. The infamous video for the electro legend’s 1997 single "Come to Daddy" features millions of small children, all with a replica of Aphex’s grinning face between their shoulders. It’s terrifying. The dizzying grins are similar, but don’t fear; these little ladies are harmless.

Have you ever wondered what it would be like to have a clone? Another human being with the same face, body and DNA as you? Well, imagine having three clones:a little gang of yourself. Imagine the scrapes you could get each other out of. Imagine the fun, the confusion, the noise. But imagine giving birth to four babies at once...now that could be slightly less enjoyable.

Steve and Allison Mathias married in 1997. They lived in family-friendly Lexington, South Carolina and like many other young couples they wished for a baby. Allison was delighted when she fell pregnant, but she got much more than she bargained for. Her belly swelled, and swelled, and swelled a bit more. For despite not undergoing fertility treatment, Allison was expecting four babies; a veritable litter. Because of her unusual situation, Allison was referred to a hospital in Columbia and placed under the charge of a specialist in high-risk pregnancy. But in February 2000 Allison gave birth to four absolutely identical baby girls, defying odds of one in ten million.

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The girls were all born prematurely and with a low birth weight so their future looked precarious. But five years down the line they are all happy, healthy and endlessly entertaining. Alison informs us, "I have a leader; a – I hate to say – whiner; and then somebody who thinks she's the boss; and I have a teaser".

This film follows the Mathiases story from the surprise news of the pregnancy and the life-threatening birth to the day the girls start school. Throughout, passers-by stop Allison in the street to shriek, "Excuse me ma'am, are they for real?" In this mind-boggling film we see the four mini personalities in action - from leader Grace, Allison's firstborn, to the baby of the group Anna, with only 30 seconds between each birth. Allison thinks the girls fill the usual sociological roles of birth order, only in this case the births were just moments apart.

We hear all about the trials and tribulations of bringing up four babies at once. As well as the initial worry of getting the quads mixed up, the costs were immense and the Mathiases had to rely on family, friends and health insurance. Each girl had her own place at a special feeding table donated to the family by the church. At six months old, a $1000 worth of formula fed the girls for two weeks. The Mathias quads also went through 10 jars of food, 16 bottles and 32 nappies a day, and their weekly supermarket bill is $250. We also hear how Masters graduate Allison had to leave her job in a hospital to become a full time mother, and how the Mathiases cope when going on holiday with four rowdy girls asking "Are we there yet?" Not to mention the squabbles over who gets the front car seat, who sits by mum at the dinner table and who gets the biggest portions of macaroni cheese...

Identical twins are produced when one egg is fertilised by one sperm; sometime after fertilisation the egg splits into two halves. Identical quads are miraculously created when the two halves split again. They share 100% of the genes and they really are each other's natural clones.

Births of quadruplets have increased by some 400% since 1974 as the advent of IVF treatment has made multiple births far more common than ever before. But IVF can never produce identical multiples, making the Mathias clan an incredibly rare sight to see. There are estimated to be only 58 sets of identical quads in the world!

We’ll be joining the squawking little girl gang at a crucial time as they embark on their first day at school. This film captures the nerves of the quads and the confusion of the teachers as they head for their first day in class. We’ll also marvel at how incredibly close the sisters are as they help one another through one of the first big steps of their lives.

"My little babies are all grown up," Allison says, confessing that it will partly be a sad day. But surely she’ll be grateful for the peace. She later concedes that this is the place the girls will begin to show their own personalities, and she’s also looking forward to not hearing everything in four way stereo all day.

Wednesday, October 21, 2009

Extraordinary People - The Couple With 27 Children

Extraordinary People - The Couple With 27 Children

This is the story of Jeanette Murphy, Supermum. The 53 year-old from Atlanta, Georgia is a full-time carer who has adopted 23 children with special needs on top of her own four birth children. Remarkably, the family of twenty-nine all live under one roof.

Jeanette and her husband claim they felt a calling to help children with special needs. Jeanette first became interested in mental disability in her teens when she became friends with a Down’s Syndrome boy who lived on her road. The experience inspired her to work as a counsellor in a home for disabled adults, and it was there that she met her husband, John, a nurse. John shared her dream of bringing children into their family and providing them with a safe and loving home. “We found that the people we were looking after had already been raised and had picked up bad habits that we couldn't change. We wanted to reach out to them when they were younger,” says Jeanette.

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In 1983, when they already had two biological children of their own, the Murphys adopted Shannon. 5-year-old Shannon was severely brain-damaged and hyperactive; she was extremely demanding and needed constant care. Nevertheless John and Jeanette felt encouraged to take on more children, including sweet-natured “family favourite”, baby Jonathan, who had Down’s Syndrome and had been wrongly diagnosed as blind. After that, the church adoption services contacted them every year with details of another child, and the Murphy family grew steadily. Adoption centres soon started referring parents who were reluctant to abort but unable to cope with disabled babies to the couple.

In the film, John and Jeanette’s birth children are asked how they felt about the idea of the ever-expanding family. Not that they had much choice; the Murphy children had to accept each adopted child in order to fulfil their parents’ dreams. “I never felt neglected,” says Shaun, the oldest of the children. “I never felt they weren’t paying enough attention to the biological children... It was like a team effort.” The children contribute to everyday life in the home, which the Murphys hope will aid in the development of their social skills.

Looking after such a huge family is obviously no mean feat. The monthly food bill is around £9000 and it’s a 24/7 job. The extended family has to manage on community donations and disability payments. Their house is cramped, with bunk beds housing up to four children per room. But the Murphys’ unwavering life ethic has enabled them to develop a unique approach to caring for the mentally disabled. They are convinced that a loving family home is the best possible environment in which to nurture the potential of these children, many of whom have physical as well as mental disabilities. They consider it vital to teach the children real life skills rather than “pampering and babying.” One of their daughters, Angel, is blind and has a prosthetic leg, but she is in charge of bath time and helps to care for the other children. She was a frightened child when she arrived, but “now she’s fearless,” Jeanette proudly explains. “Our goal is for the kids to eventually get jobs and marry. If we ever have enough money we want to build a second house for the older kids, where they can live semi-independently.”

But it’s not all sunshine and rainbows at the Murphy’s house. Behind the family’s daily life, concern over the children’s health always lurks. Down’s Syndrome is accompanied by heart defects, and most of the children were born with life-threatening conditions. The Murphys had a big scare when little Emily’s pacemaker stopped working. “Once you experience something like this, you know that bad things can happen,” says Jeanette. In 1990, baby Jonathan was diagnosed with leukaemia; he endured three years of chemotherapy and painful surgery before he died. “When you lose a child, it feels like you’ve lost a part of you,” says Jeanette. “I've sat through 14 heart surgeries for 13 kids panicking every time a doctor rushed down the hall. Five of our children have died – three as babies – and my world fell apart every time. They were all so precious.”

Not everybody approves of the Murphys’ methods, and some are determined to bring them down. “A lot of people think it’s impossible, so we must be doing something wrong,” explains Jeanette. When their son Cody’s biological mother handed him over as a baby, his grandparents decided that they wanted custody themselves. The ensuing legal battle and accompanying media circus put the Murphys in the spotlight, but the Court of Appeal ruled in their favour.

Some of the children, such as 20-year-old Amy, who has a part-time clerical job, may gain a degree of independence. Others will need more care as they get older, and some have declined dramatically. John and Jeanette won’t be around to supervise them forever, but for now, the Murphys put their faith in God and take it one day at a time.

Jeanette is optimistic about the future of her clan. “I am happiest when I see them helping one another, like the other day when Mia, who is ten, fell down and scraped her knee. Cody and Nathan, who are 14 and ten, brought her inside for a plaster. I see how much love they have every day.”
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Extraordinary People - The Tiniest Boy in Britain

Extraordinary People - The Tiniest Boy in Britain - EP17

Five’s acclaimed documentary strand continues with the story of two-year-old Alex Connerty, Britain’s only primordial dwarf. Alex was born with an extremely rare condition that has stunted his development and means that he will grow to be no taller than three feet. This film follows Alex and his family as they travel to the US to meet the world’s only expert in primordial dwarves, in the hope that he can tell them what their son’s future holds.

Alex Connerty from Liverpool suffers from a remarkable genetic disorder called primordial dwarfism, which results in smaller physical development from the womb onwards. This condition, barely understood by doctors, affects an estimated 100 people in the world, and is so rare that it can be difficult to diagnose. So little is known about the disorder that doctors cannot even predict how long Alex will live – whether it be two, five or ten years. It is known, however, that primordial dwarves almost never live beyond 30 years, and that they are at greater risk of internal organ problems.

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This film meets Alex’s parents, Sue and John, as they talk frankly about living with a condition that has baffled medical experts. Sue explains that she knew something was wrong with Alex even during pregnancy. She had three miscarriages before conceiving him, so was especially alarmed when Alex did not move in the womb. “I bought a listening device so I could hear his heartbeat just to put my mind at rest,” she says.

Doctors assured Sue and John that Alex was simply a small baby; however, at 30 weeks, a scan revealed that Alex had stopped growing. Sue was rushed into hospital for an emergency Caesarean. “I was devastated – I thought I had lost another baby,” she says. Almost one third of primordial dwarves die at birth or soon after – but, against the odds, Alex survived. For the first three months of his life, he was kept in intensive care as he battled stomach and lung problems. Then a visiting geneticist examined Alex and came to a conclusion that his parents had never expected to hear. “She said, ‘your son is a primordial dwarf’,” John recalls. “I didn’t understand what she was on about. She tried to explain. [When] she told me he would never be bigger than three foot, I laughed in her face.”

After the news sank in, John and Sue had to come to terms with the terrible consequences of Alex’s condition. Aside from his curtailed life span, he would never be able to have children, and was at risk of slow development, spinal curvature and breathing problems. The couple were further staggered to learn that there was little information their doctor could give them. “He literally said, ‘I don’t know the answer’ to most of our questions,” Sue says. “We were flabbergasted.”

What is known is that Alex is in severe danger of suffering a ruptured blood vessel in his head – a common occurrence in primordial dwarves, whose brains often develop faster than their skulls can accommodate. This is why the Connerty family have decided to travel to Seattle tomeet the only world expert in primordial dwarfism : Dr Charles Scott. In Seattle, Alex has access to a type of MRA scanner unavailable in the UK, which may help give John and Sue the answers they need about their son’s future development.

While in the US, the Connertys also find time to visit the ‘Little People of America’ convention, where they meet the parents of other primordial dwarves, and discover that they are not alone in coping with this incredible and disturbing condition. “Our son will walk with giants for the rest of his life,” Sue says. “But to us he is a titan, and already people stand in his shadow –his family among them.”

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Wednesday, October 7, 2009

Extraordinary People - The Man With Someone Else's Face

Extraordinary People - The Man With Someone Else's Face
Aired: Wednesday April 22, 2009

The documentary strand exploring remarkable tales of human experience continues. This edition follows a leading Chinese surgeon as he performs a partial face transplant on a man mauled by a bear. Meanwhile, a burns victim hopes that the successful outcome of this case will pave the way for his own full face transplant.

In 2005, doctors in France made international headlines when they performed the first-ever face transplant. Six months later, surgeons in China surprised the world with the news that they had performed their own facial transplant. This film follows the tale of this pioneering treatment and the prospects it holds for other patients.

At the Xijing military hospital in Xian, Dr Guo Shuzhong has become accustomed to treating patients with horrific injuries. “Some patients are so badly disfigured, they don’t look like human beings anymore,” he says. News of the face transplant in France is of especial interest to Dr Guo, who wants to make his hospital, and his country, a world leader in this extreme new form of surgery.
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A candidate for the first Chinese face transplant appears in early 2006. Word reaches Dr. Guo of a tribesman in the remote Yunnan province who suffered horrific injuries after being mauled by a black bear.

After studying photos of the patient, Li Guoxing, Dr. Guo invites him to the hospital – a gruelling, four-day journey over 1,500 miles. Li does not speak Mandarin Chinese and is unused to the big city. Accompanied by his nephew, who acts as translator, he undergoes his first medical exam. Dr Guo finds that Li’s face has been utterly destroyed by the bear – his nose has gone, his cheekbone is broken and there is a gaping wound in his cheek, revealing the tissue below. “His condition is critical,” says the plastic surgeon. “It’s going to be very difficult.”

Before surgery can begin, doctors must find a donor face that matches the age and shape of Li’s own. The face is eventually provided by a road-accident victim. Now surgeons begin a mammoth 18-hour operation to remove the face and stitch it onto Li’s head. The surgery is particularly complicated because bone from the donor must be attached to recreate Li’s nose, and each blood vessel must be sown under a microscope. However, the initial results are good. “When I looked in the mirror, I was very happy. It was like a dream,” says Li.

A face transplant requires a lifetime of follow-up treatment. To stop his body rejecting the donor skin, Li must take drugs to suppress his immune system. He faces three threats in the form of infection, metabolism changes and an increased risk of cancer. But after 18 months in hospital, a homesick Li checks himself out against medical advice and returns home.

Li is now so far away from modern medical facilities that he runs the risk of complications with his surgery. Dr Guo soon learns that Li’s skin is rejecting the transplant. He travels to Yunnan to confront his patient and discovers that Li has stopped taking his drugs because he was feeling better. Despite Guo’s entreaties to move to the city full-time, where doctors can keep an eye on him, Li insists on staying in his mountainside village. The outcome of the pioneering surgery now hangs on Li’s promise to resume his medication. “I feel frustrated,” says Guo. “I spent more time looking after that patient than I did my own family.”

If Li’s transplant fails, it could have serious consequences for other patients hoping to undergo the procedure. Among them is petrochemical plant worker He, who sustained appalling burns whilst saving his colleagues from a gas leak. His act of heroism left him totally disfigured and he has been shunned by society. Surgery is his only hope of returning to a normal life. “This is my second chance at life,” he says. He has already moved closer to the hospital and is prepared to follow the doctors’ instructions. But will his dreams be realized?

NOTE:
Li died later 2008. He don't wanna live in the city (because he is not used to it).

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Extraordinary People - The Worlds Heaviest Man Gets Married

Episode 16 - Extraordinary People - The Worlds Heaviest Man Gets Married
Runtime - 45min

When he first came to the attention of the media, 43-year-old Manuel Uribe was a desperate man. Weighing over half a ton, the monumental Mexican had been confined to his bed for some years and was severely depressed. In the depths of despair, Manuel turned to a local journalist and appealed to the world for help. Floods of offers came in from surgeons and dieticians, and Manuel was soon on a strict regime of exercise and dieting. Two years later, Manuel had lost a massive 180kg. Perhaps more remarkable than his weight loss, however, is the fact that he had managed to find love.

Manuel met his fiancĂ©e, Claudia, four years ago. What is most surprising about Claudia’s decision to marry Manuel is the fact that she has been in this position before. Her first husband weighed 220kg and dropped dead just six years ago as a direct result of his bulk.

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With the media circus in regular attendance at Manuel’s house, the quiet wedding ceremony he and Claudia had planned is no longer an option. Manuel’s huge size also means that his marriage will be somewhat unconventional. Still unable to walk, Manuel will travel to the venue and exchange vows without leaving the relative comfort of his reinforced bed

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MONTERREY, Mexico--Manuel Uribe, who once weighed 1,235 punds, has lost more than 500 pounds, thanks to an international team of doctors led by Dr. Barry Sears, creator of the Zone Diet. setting a new world record for the most weight lost.

He weighed 717 pounds (324 kg) in May after losing 518 pounds (235 kg) since March 2006 on a diet of grapefruits, egg-white omelets, fish, chicken and vegetables. Uribe has also added a new goal to his weight-loss plans – he wants to be able to stand up for his wedding in the coming year.

His wish is simple – to be able to stand on his own when he marries girlfriend Claudia Solis. He said: “It frustrates me a little, because it is not easy to get out. We are in love, and this year my birthday wish is to be able to stand when we get married,”

Its been four years since the couple met four years ago and now they have been together for the last two years.

“We are a couple. We have sex, and in the eyes of God we are already married,” said Uribe. In fact, his ladylove, Solis said that life with a big man was not a cakewalk all through. “I bathe him every day, and we get along very well. At times, yes, people say things … that it’s a fake relationship, but what we have is real,” she said.

Claudia said her family initially opposed the match because Claudia's first husband, who was also obese, died of respiratory failure. "They were worried about me being involved with another fat man, because they thought another husband would die on me," she said.

Uribe spent the 1990s eating pizzas and burgers in the United States where he worked as a computer repairman. Addicted to junk food, he eventually tipped the scales at 1,235 pounds (560 kg) back in Mexico, bingeing on greasy tacos.

His bulk made him the world's heaviest man.

A former auto parts dealer who has been confined to his steel-reinforced bed for more than six years, Uribe blames his condition on too much junk food and a botched liposuction that damaged his lymph nodes and left him with 200-pound tumors on his legs.

Uribe is still unable to move his swollen legs and his dream is to walk again and visit the mountainous countryside around Monterrey.

Until then, Uribe wants to share his story with others in the hope it will serve as a warning about diet, junk food and the need for moderation in all things.

About two years ago, a team of doctors stepped in to help Manuel change his eating habits and tackle his extreme obesity. Today he says he eats small portions of food five times a day, including chicken, ham, egg-white omelettes, fruit and vegetables. While sitting in bed, he exercises his arms with pull-ups and by pedalling with his hands.

Hoping his struggle will inspire others, Manuel plans to launch the Manuel Uribe Foundation this year to educate people about nutrition and how to combat obesity.

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Extraordinary People - Freak Show Family

Extraordinary People - Freak Show Family
Aired: April 01, 2009

The Film is about a group of Indonesians whose shocking medical conditions made them the star attraction in a travelling freak show. With the show now disbanded, the performers have returned to their villages, where they face the prospect of finding work outside the circus. The programme follows British surgeon David Koppel as he visits Indonesia in a bid to help combat their diseases.

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The documentary strand exploring remarkable tales of human experience continues. This edition features a group of Indonesian circus performers whose shocking medical conditions made them the star attraction in a travelling freak show. With the show now disbanded, the performers have returned to their respective villages where they face the prospect of finding work outside the circus. ‘Extraordinary People’ follows a British surgeon as he travels to Indonesia to see if he can help the people combat their conditions.

In Indonesia, a close-knit group of circus performers known as ‘the Clan’ has long been the main attraction at a travelling freak show. Esih, Sahi, Sakim and Mamat all have extreme physical conditions that have never been diagnosed, but the performers have managed to earn a living thanks to the morbid fascination of the public. However, the circus has now gone out of business and the four performers have been forced to leave life on the road and return to their villages. Sahi is trying his luck at woodcutting, but says the work irritates his skin, which is covered in bubble-like tumours. “At least I never went hungry when I was part of the freak show,” he says. Esih, meanwhile, is unable to work at all because of an enormous growth on her face. “I have no life,” she says.

Having heard news of the Clan’s plight, British craniomaxillofacial surgeon David Koppel is keen to help. So far, all he has seen of the Clan is a video of their act. “The whole thing is distasteful,” he says. “It’s exploitation of their appearance.” Mr Koppel hopes that by flying to Indonesia, he might offer the group members diagnoses, and provide them with treatment that could turn their lives around.

Before Koppel arrives in Bandung, the four performers meet at Esih’s house. It is the first time the friends have seen each other in many months, and it is an emotional reunion. In fact, the situation proves too much for Esih, so Sahi, Sakim and Mamat head to a nearby hostel for the night. The next day, Mr. Koppel is on his way to Bandung when he receives some worrying news. Esih has collapsed and must be taken to a local hospital for treatment, meaning she will not have the benefit of Mr. Koppel’s expertise this time around.

Once he has met up with the remaining three, Mr. Koppel sets about examining his patients and has soon come up with some diagnoses. Sahi and Sakim are both suffering from neurofibromatosis (Nf) – a genetic disorder that leads to the development of soft, fatty tumours on nerve tissue all over the body. Sakim’s tumours are mainly on the face, where one particularly large one has rendered his nose saggy and trunk-like. Sahi’s tumours exist all over his body. “It is not possible to remove all of these lumps,” says Mr. Koppel, “but it is possible to remove several of them.” Mamat’s dry, scaly skin condition is outside Mr. Koppel’s area of expertise, so the doctor takes his patients to Jakarta to enlist further medical help.

After meeting with dermatologists and surgeons at Jakarta’s teaching hospital, Mr Koppel gets his patients an appointment with the experts for the following day. “That’s a good result for the people involved,” he says. Delighted with the support the local doctors have offered, Mr Koppel visits the Clan members at their hotel to deliver the good news. Sakim is uncomfortable with the prospect of being examined by the doctors, but agrees to join the others. Mamat, on the other hand, wants to go immediately. “The sooner we go, the sooner we get some understanding of our conditions,” he says.

At the hospital, consultant dermatologist Eddie Carter recognises Mamat’s skin condition and is able to prescribe medication that will relieve his symptoms. After seeing the local surgeons, Sahi is booked in for a treatment to remove the worst of his tumours. In just six week’s time, Sahi will return to Jakarta to undergo an operation that could change his life. However, Sakim’s doubts get the better of him and he decides to return home to consult his family before going ahead with any treatment. “I think it’s a step in the right direction,” concludes Mr Koppel. Unfortunately, Mr. Koppel’s visit came too late to help Esih, who died of undiagnosed breast cancer in January.

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Sunday, September 27, 2009

Extraordinary People - Oldest Conjoined Twins

ExtraOrdinary People - Oldest Conjoined Twins
Five’s acclaimed documentary strand returns for a new run of programmes exploring some remarkable tales of human experience from across the globe. The series opens with the story of Ronnie and Donnie Galyon who, at 57 years old, are the oldest conjoined twins in the world. The cameras follow the brothers as they attempt to fulfill a lifelong dream of watching their favorite American football team play.

For nearly six decades, Ronnie and Donnie Galyon have been locked together in the same body. Joined from the base of the sternum down to the pelvis, the twins’ everyday life is full of co-operation and compromise, since even the simplest of tasks can pose a challenge. But having spent their lives facing each other, Ronnie and Donnie get through each day thanks to a well-rehearsed and specially choreographed routine.

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They live on their own in Dayton, Ohio, but are heavily reliant on their younger brother Jim for help. “Jim has been a saint for Ronnie and Donnie,” explains Dr Glenn Kwiat, the family physician. “He’s their lifeline.” To ensure the twins live as normal a life as possible, Jim and his wife Mary regularly take them out for breakfast at a local diner. Here, Ronnie and Donnie are well known by the locals and can enjoy their food in peace. But with the twins’ health now declining, Jim wants to take them 800 miles away to help them fulfil a lifelong dream of watching the Dallas Cowboys play in Texas.

Despite sharing the same body, the twins have very different personalities. “They’re total opposites,” explains Jim. While Ronnie is happy-go-lucky, Donnie is more uptight, even stubborn, according to Jim. They both enjoy watching television, but do not like the same shows. Their disagreements often end in fights, but the pair would never dream of being separated. “We were born this way by God,” says Ronnie. “Let God separate us, not surgical knives.”

From the day they were born, the twins were bombarded with offers of work from fairs all over the USA. With nine children to support, their father, Wesley, made the difficult decision to take the twins on the road as a sideshow attraction. But Ronnie and Donnie loved life on the road. Their tours made them celebrities and brought them fame and fortune, with which they were able to support the rest of their family. “I’m proud of them for that,” says Jim.

In 1991, after three decades of work, the pair retired and moved into their first independent home. Despite being 39 at the time, the twins had never looked after themselves and needed a year of lessons from Jim to learn essential skills like cooking and housework. Over the last decade, however, the combination of weight gain and old age means that coping is becoming ever more difficult for the twins. “I think they feel somewhat trapped in that house,” says neighbour Scotty.

While they are still able to move, Jim is determined that his brothers will make it to their first football game. “This is a once in a lifetime thing,” he says. “They’re totally stoked.” When the time for the trip arrives, the twins are very excited. “Got up at 4 o’clock, had a shower and I’m ready to boogie!” says Donnie as he and his brother are helped into Jim’s specially adapted car.

Once away from their own neighbourhood, Ronnie and Donnie are attracting a lot of attention –but Jim is more worried about getting the twins onto the plane. However, he will not let a minor inconvenience like fitting onto the plane get in his way. “If all else fails, we’re driving to Dallas,” he says. Luckily, the airline crew have allowed the twins three seats in a row and they manage to make it safely to their destination. After an anxious wait to repair the special wheelchair that was damaged in transit, Jim, Mary, Ronnie and Donnie arrive at the stadium. But the brothers’ loyalty may yet be divided, with the twins supporting the Cowboys and Jim rooting for their opponents, the Bengal Tigers.

NOTE:
Ronnie and Donnie have mostly pleasant memories of life in the sideshow, but they enjoy the freedom of retired life and say they would not want to return to showbusiness. When asked about separation, the brothers reply in unison, "No Way!"

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