BodyShock - The Boy With a New Head

BodyShock - The Boy With a New Head

Petero Byakatonda lives in a remote village in Uganda. Born with an extremely rare disorder, his skull is being forced into a cone shape, squashing his brain and destroying his eye-sight. He has been flown to Dallas, Texas for life-saving surgery from a leading US surgeon.

Petero suffers from a rare genetic disorder known as Crouzon's Syndrome or Crouzon's Disease. It affects just one in ten thousand new-borns and needs to be corrected within a few months of birth. Because Petero's village is so isolated he was left untreated. It's extraordinary that he is still alive.

In Crouzon's Disease the bones of the skull fuse together prematurely, so the skull can't expand as the brain grows. The brain is forced to grow in the direction of least resistance.

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Dr Kenneth Salyer the leading craniofacial surgeon who will treat Petero explains "Petero has ended up with a steeple-shaped skull because this was the weakest area of the skull. So the brain grew up instead of forward. This can result in constriction of the brain to the point where there may be herniation at the base of the brain and death".

Petero's trip to Dallas and his subsequent treatment was made possible by a charity headed by Dr Salyer called The World Craniofacial Foundation. Founded over 17 years ago, the charity helps over 75 children a year, from all over the world, suffering from severe skull deformities.